D - Day!!

Discharge day!!!  I can't believe that day is finally here!! Well ..... kinda... tomorrow is close enough!  They started preparing us for discharge about a week ago. Dylan went in for his G-Tube surgery last Friday, and they told us that he should be good to go 5-7 days after surgery.  Wow!!  Really??  We're good to go??  Only 2.5 weeks Post - Norwood,  and we're good to go??  YAY!!!!!!!   Dylan is such a strong little boy!  He would have been ready to go home a week ago if he wasn't having the eating issues and the vocal cord issues that he is having. During the G-Tube surgery, the surgeon told us that Dylan has quite a small stomach, it's 2/3 the size of a "normal" stomach, so therefore, his feeds need to be adjusted to take that into consideration.  His tummy is to tiny to handle bolus feeds right now, so they are sending him home on continuous feeds.  I'm not very happy about that just because that means that he's still tied to a tube and pump for 20 out of the 24 hours a day........... BUT..... he will be HOME, so that's all that matters! :-)

It's been a very busy week for us since we learned that he would be getting discharged soon.  We didn't have ANYTHING ready... we knew that Dylan was going to be in the NICU for awhile, so we knew we had time to get everything done. So last week we started ordering everything, his crib set, his dresser, the gliding chair, getting all his diapers and wipes and everything he needs.  It was SO exciting and stressful at the same time!  It was stressful because while we were trying to get things ready for him at home, we still had to be at the hospital learning all of his G-Tube stuff and how to feed him and take care of him. 

Joe did such a great job with everything, he put the crib together, the dresser, the chair, and got the stroller and car seat ready.  Everything is set.  I picked up all of his medicine today, and Dylan got his shot's the other day, passed his hearing test, and we also did the car seat check, which he passed.  They delivered all of his G-tube supplies and his Pulse Ox machine to the room and instructed us on how to use them, and all of his doctors appointments are set up. Everything is good to go!!!  All we need now is Dylan! <3

We are happy, nervous, scared, excited.  I hope I don't mess up, I hope he likes being home, I hope he adjusts well....... I hope I adjust well.

Tomorrow is the day!!!  I'll post when I can, but I know that the first few days of him being home are going to be us adjusting and making our own routine........ and just us loving on him without vulture nurses hovering around our heads.  It's going to be great!!!

Dylan's ready to come home!!! <3